Tuesday Update

Sulwen remains at LPCH today and is doing better, though she isn't quite as perky today as she was after her blood transfusion. The above picture is from Sunday when there seemed to be no stopping this little Cardinal baby!

The Rheumatology and Infectious Disease (ID) teams continue to monitor her as well as assess lab results. Tanna told me that she would be seen by ALL the ID doctors this afternoon so that they could collaboratively talk about her case and use a "group-think" process to help with the deductive diagnosing process. More lab work is scheduled for late today and there remains a possibility that they will schedule an MRI.

The family is doing as best as they can under this great strain. Despite LPCH being a first-class institution, it is not home and the family longs to be back where they feel most nurtured and supported, in Timber Cove. Nanny has been a champ, steaming vegetables and making brown rice for Tanna, Stephen and Sulwen. Stephen was able to work from his Mom's (Nanny's) home today, though I am certain it didn't feel normal. Tanna is ready for gardens, fresh air and less processed baby food, but she is philosophical in her cabin fever.

My hope and theirs is that the health care process will be extra efficient and streamlined for them in the next few days. It would be a welcome change and it might just bring them home, too.